Today we went to visit the surgical ward at the children’s hospital. It is a week until D is due for his operation so we are trying to get his head into the right place ready for the big day.
We have talked about the operation and what it will probably involve. I suppose me having been in hospital for longer than expected this year has opened up several avenues of conversation as he has worried about what will happen to him.
He is petrified about the idea of needles because of a doctor digging when he had to have bloods taken when he was tiny – the thing with my little aspie is he might have a terrible short-term memory but his long-term memory is fantastic. We have therefore spoken about why they might take blood or insert a cannulae. He understands the need, even if he doesn’t fancy the prospect!
When we got the letter informing us of the date he did begin to panic, so we have been trying all things possible to make it into as organised experience for him as possible. The truth is we have very little information about what to expect after the op so it has been quite difficult to help him. It was suggested we organise a visit to the ward to give him an idea of what being in hospital might be like.
Today was the day of this visit. He was nervous – and that’s putting it politely! He was quiet most of the morning and getting him dressed to heading off was even harder than it is most days. We picked up Hubby who works near the hospital and headed down. D was very agitated, but M seemed in a worse state. M kept telling D to keep hold of his teddy as hospitals were very easy to get lost in for cuddly buds! M told Hubby to hold Ds hand so he didn’t get lost too! Everytime he went a step a head, M was shouting him back! Taking M to see where D would be was almost as important as D seeing it as he will be an emotional mess next week!
We were met by a lovely lady who directed the conversation to D – I do hate it when you do things that are about the children and they get ignored because of the parent being spoken to. She asked him who he had bought with him, and he instantly introduced Willy Bear who was clutched tightly in his hand! She then asked who the humans were he had with him! He introduced us to her, and she asked if M was his brother or a friend to which he indignantly responded he wasn’t his friend just his brother! Can’t beat a bit of brotherly love can you?!
He was shown the two types of room available, but was drawn to the playarea, where he was happy to play a round of Mario Kart while I spoke to the lady. She said about the people he would meet, and what they would be doing to him! She said the time spent in bed would be dependant on the physio and likewise the time in hospital and off school. She also said he might get a walking frame or crutches – he is desperate to try crutches but I’m not sure how his aching wrists would cope with them. We will have to wait and see!!
I came out of there feeling a little more settled in my mind about what will happen next Monday. D said he was ok, but has said little since leaving the hospital. That is until out of nowhere he announced he wished it was next week as he is now excited about going into hospital.
We have links to sites to show him about the anesthetic and what it might make him feel like, which we will show him at the weekend as we don’t want to overload, him with information all at the same time. It is a fine line to get it right, balancing too much too soon against not enough time to process it before the day.
I just know this will be a long week with him having some high ups and very low lows!